I sadly had to take my son back to the hospital at noon, as
that was the expiration of his overnight pass. I wish we would have had more
time together, but he just wants to chat with his friends and play drums. So I
don’t really see him even when he is here.
Upon leaving the hospital parking garage my driver side
window stopped working – yippy… It seems like it must have fallen off the
mechanism, as you can still hear the window motor when you push the button –
but the window is currently stuck in the FULLY OPEN position brrrr… I suppose
it’s going to cost me an arm and a leg.
I then had a very nice lunch with my evil landlord – he is a
good and generous guy (please don’t tell him I told you that, as he already has
trouble finding hats that fit his big ego, I mean head J) – kidding… He threatened
me again with the exercise plan – so I hope we get that started soon. I might
call my family doc tomorrow, just to let him know about my back and legs. I am
having a hard time getting in and out of the car, and walking.
So questions for Harvard:
1 1) What
is the current prescribed initial treatment phase? Are doctors still following
the original 20 days (4 weeks)? – some of my online research found some doctors using 30
days (6 weeks).
2 2) Is
there any definitive number/plan/protocol either being used or looked at for maintenance
treatments?
3 3) Is
there a favored medication for the extension of the positive effects of the
treatment?
4 4) Are
there any medications (other than the ones we already know; sleeping med,
antiepileptic, etc) doctors feel interfere with the rTMS treatment?
5 5) Is
there any concern of over use? Or a buildup of immunity?
Damn
there are probably a million questions I should/could ask, but I can’t think of
any others!!!
I
didn’t get any sleep last night, as my son was coughing all night and I was
worried about him (only to get up in the morning and find out he slept ALL
night)… and tonight I can’t take sleeping meds as I have a treatment tomorrow,
and I ran out of melatonin – so ya awesome…….
As
I sit here I realized that maybe 3 hours ago I started to feel a little sad,
and had a flash of a suicidal thought (they are strange and hard to explain) –
I will be just sitting there and suddenly I will think wow my life will never
be any better, there is no hope I need to die and then thankfully so far they
disappear as quickly as they arrive. The sadness though, as we have spoken
about before, could be all about my son, or the added expense of the window,
and or all of the above. I guess we will know for sure tomorrow after the
treatment, if I get a lift after the rTMS treatment then we will have a clue…
I
will let you know tomorrow.
Talk
to y’all tomorrow…
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